Foundations and Other Organizations
Brave Kids site
A site for kids and their families that are dealing with chronic illnesses
(Not CF-specific)
http://www.bravekids.org/
Pediatric Database
A clinical description of the disease and its treatment
http://www.icondata.com/health/pedbase/files/CYSTICFI.HTM
Medrise's page
A very good site for all kinds of CF stuff
http://www.cysticfibrosis.com
National Cystic Fibrosis Awareness Committee
Site that promotes CF awareness.
http://www.ncfac.org
International Association of Cystic Fibrosis Adults
Good newsletters, info on CF Adult issues.
http://www.iacfa.org
The Boomer Esiason Foundation
Basic CF info, fundraising events, etc.
http://www.esiason.org
Cystic Fibrosis Foundation
Good resources, on-line store, on-line pharmacy info
http://www.cff.org
HealthlinkUSA
Kitchen sink of illness-related links. Interesting mix of links for CF
http://www.healthlinkusa.com
The Cystic Fibrosis Center at Stanford
News, info and links. Good site...
http://cfcenter.stanford.edu
The Web of Care's Cystic Fibrosis Community
Support, products and information for caregivers
http://www.webofcare.com/cysticfibrosis.html
CF message board
Great board for discussing anything, CF-related or not. Not a 'chat' board
but a message board.
http://www.javaboards.com/cfboard
Risa Gans' site
Info about transplants, Transplant Sharing Exchange
http://members.boardhost.com/Transbuddies/
Sandy Cochran's CF information site
http://www.geocities.com/HotSprings/Villa/9559
Jeff Wine's page of CF links
Last updated 5/98
http://www-psych.stanford.edu/~wine/CF-Links.html
Canadian Cystic Fibrosis Foundation
http://www.cysticfibrosis.ca/
CF-Web at MIT
Lots-o-links
http://cf-web.mit.edu
Rich Lukas' site
Very comprehensive list of online CF resources
http://vmsb.csd.mu.edu/~5418lukasr/cystic.html
CYSTIC-L internet mailing list home page
Cystic-L is an email-based discussion group. This is their home page.
Good photo section! A perusal through this area will show you the faces
of CF. Highly worth while...
http://Cystic-L.org
Scott Compton's page of CF Links
http://www.asbestos.org/scott/CysticFibrosis
Norma Kennedy's page of CF Links
Good resources and photos. Check out the photos of Brian Rydall's lung transplant
scars. Wow!
http://www3.nbnet.nb.ca/normap/CF.htm
Bob Wright's page
The life and times of a person with CF
BobAndGail.com
Michelle Compton's website
Poetry (by people with CF) and other beautiful things
http://www.dragonflypond.com
Ami Leigh's page
Home of the Insanely-Fit, Fry Loving Princess
AmiLeigh.homepage.com
Jose Pulido (en español)
How do you say 'cystic fibrosis' in spanish? Find out here!
http://www.geocities.com/HotSprings/2677/
The European Cystic Fibrosis Society
Euro-specific CF stuff. Go here before you go there...
http://www.uwcm.ac.uk/uwcm/eqgcf
Canadian Cystic Fibrosis Foundation
Good site. Lots of on-line info. Canadian CF clinic site addresses, research
info, email discussion
http://www.ccff.ca
Cystic Fibrosis Victoria (Australia)
Cool. Lots of services, help for people in Victoria. Good organization to
emulate.
http://www.cysticfibrosisvic.org.au
Newsletters
NEWSLETTER LIST www.cysticfibrosis.com has a GREAT list of newsletters at this address: www.cysticfibrosis.com/newsletters.htm.
NETWORK A national (USA), quarterly newsletter
for adults with CF.
You may subscribe via e-mail by contacting NETWORK's editor, Larry Culp
at LDCulp@voicenet.com, or by writing
to the address below. If you or your child(ren) have CF, please provide
date of birth. Thank you.
CF Network, Inc, P.O. Box 3459 Littleton, CO 80161-3459
INFORMER 16 pages, bi-monthly. Nicely home-spun. Informational but also informal. Pictures, mail-buddies, birthdays, etc.. Contact Bev Donelson at bevd@hhcs.com.
CF ROUNDTABLE A newsletter put out by USACFA (US Adult CF Association). To subscribe email CFRoundtable@cysticfibrosis.com or call (503)669-3561.
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